Dexamethasone

Dexamethasone 2018-08-19 Person 1 5 0

Keep of this if at all possible. Side effects are awful !!!!. If it can be substituted with another steroid like Press please, pleasecsubstitute where ever possible. My daughter was given these in hospital with no information or discussion by her doctors- she was not informed if any if the side effects. She suffered from swelling if the face ( it was so bad as her mother I didn't recognise her) her appetite increa See and she couldn't get enough food - visitors had to bring in additional food to support her hunger pangs. Yet she list 5.5kgs in 10 days in hospital. She lost muscle - had muscle dystrophy when she was discharged we had to go private to see a physio. She had shiet term memory loss. Eyesight was affected she ciylxng focus properly and had difficulty seeing.. She couldn't recall conversations. She began to halucinate. I really don't know how these drugs have z licence - THEY SHOULD BE BANNED !!!!

Dexamethasone 2018-07-27 Person 3 5 0

I was given duff advice by the nhs and told it was safe to fly long haul with a brain tumour. This was not true at all, I suffered a micro bleed after a long haul flight due to raised intracranial pressure. The effects were absolutely devastating. I was given dexa injections abroad (nhs refuses to prescribe it) and although it did not resolve the debilitating effects of the microbleed, it kept me as safe as possible on the flight back. I have obtained a supply of dexa in the UK (obviously not from my useless nhs gp) and have been advised to start injecting several days before I fly in future. The side effects are unpleasant, but when you're in a life and death situation, you don't have much choice. I have neutropaenia and multiple auto immune diseases; this drug suppresses your immune system even more so you need to stay away from all possible sources of infection. It lso keeps you awake and makes you sweat.

Dexamethasone 2018-07-22 Person 3 5 0

I was given steroids as part of my chemotherapy routine as an anti sickness. This was administered intravenously prior to chemo every 3 week cycle then 3 days worth of dexamethasone tablets. It certainly helped with sickness. However main side effect was insomnia. I would know for the next 4/5 days I would have trouble sleeping. This quickly disappeared once I stopped taking them. This side effect probably outweighed the potentially sickness of the chemo so I stuck it out for the duration of the 6 months treatment. I subsequently had a severe skin rash with the introduction of certuximab into my chemo routine every fortnight. This rash (neck,trunk, legs and face) only seemed to disappear when I had my three weekly chemo treatment. Eventually I persuaded the doctor that it seemed to be the steroids that cleared the rash from my face. So some extra dexamethasone tablets between chemo almost clears up the face rash completely. However this is offset by the insomnia again!

Dexamethasone 2017-04-25 Person 5 5 0

No side effects from this drug taken when having chemo

Dexamethasone 2017-03-27 Person 4 5 0

I took dexamethasone tablets for one week before my craniotomy, and for one week after. I never experienced any problems at all while taking this medication.